Dedicated to everyone who has suffered a loss through SUDEP

Those of you who know me, are by now aware of my commitment to raising awareness of Epilepsy and especially of SUDEP. (Sudden Unexpected death in Epilepsy) This cause has been close to my heart since the death of my younger brother Nathan.

I am honored to have received a phone call yesterday from SUDEP Action, who have invited me to participate in a SUDEP awareness ‘Think-Tank’ with a few like minded people who are determined to make a difference.

With that in mind, and inspired by talking to local Singer Songwriter Guy W. Stoker who fights tirelessly to raise awareness and understanding of epilepsy, I set about writing my own Acrostic Poem to help raise awareness.

I’m no writer, but I thought, I would like to share it with you. Please feel free to share, so that together we can raise awareness.

SUDEP AWARENES Acrostic – By Roy Grimes

S – Secrecy prevails around this much unspoken word,
U – Unless we make it our intent to get our voices heard.
D – Death and devastation, families torn apart,
E – Experiences no one wants to play upon their heart.
P – Please join with us, lets spread the word with one united shout

A – Awareness, action and understanding, that’s what we’re all about.
W – While personal loss and tragedy has visited our lives
A – All of us have a powerful voice that we’ll never compromise
R – Regardless of our story, our losses and our grief
E – Earnestly we’ll stand up tall, as it is my belief
N – Not one who suffered SUDEP should ever die in vain, so
E – Even those who suffered loss, take comfort in your pain
S – SUDEP Awareness with your help will shortly have its say
S – So with a heart so filled with hope, I wish you peace this day